2022 DSF Conference

Join us for DSF’s Family & Professional Conference on June 23-25, 2022, in collaboration with Cook Children’s Medical Center in Fort Worth, Texas.

About

Our 3-day conference is unique in that it is designed to unite all groups committed to improving the lives of those with Dravet syndrome – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals. CME & CNE credits are available for healthcare professionals for our sessions on Friday, June 24th.

3
Days
37
Speakers
12
Sponsors
63
Sessions

Sponsors

Collaborative Supporter

Title Supporter

Premier Supporter

Featured Supporter

Gold Supporter

Silver Supporter

Dravet Activity Room Sponsor

Speakers

Danielle Andrade, MD, MsC, FRCPC
Danielle Andrade, MD, MsC, FRCPC
Professor of Medicine (Neurology); Director, Adult Genetic Epilepsy Program; Medical Director, Epilepsy Program University of Toronto
M Scott Perry, MD
M Scott Perry, MD
Medical Director, Neurology; Co-Director, Jane and John Justin Neurosciences Center; Medical Director, Genetic Epilepsy Clinic Cook Children's Medical Center
Kelly Knupp, MD
Kelly Knupp, MD
Associate Professor, Pediatrics and Neurology; Associate Research Director, Neuroscience Institute University of Colorado
Dave Shahani, MD
Dave Shahani, MD
Medical Director, Epilepsy Monitoring Unit Cook Children's Medical Center
Elaine Wirrell, MD
Elaine Wirrell, MD
Director, Pediatric Epilepsy; Professor, Neurology Mayo Clinic
Hilary Pearson, MD
Hilary Pearson, MD
Medical Director, Sleep Laboratory Cook Children's Medical Center
Ukpong Eyo, PhD
Ukpong Eyo, PhD
Assistant Professor, Department of Neuroscience and Center for Brain Immunology and Glia (BIG) University of Virginia
Gaia Colasante, PhD
Gaia Colasante, PhD
Project Leader, Stem Cell and Neurogenesis Unit San Raffaele Hospital
Christos Papadelis, PhD
Christos Papadelis, PhD
Director of Research, Jane and John Justin Neurosciences Center Cook Children's Medical Center
Linda Laux, MD
Linda Laux, MD
Associate Professor, Pediatrics; Attending Physician, Neurology and Epilepsy Northwestern University; Ann & Robert H. Lurie Children's Hospital
Scott C Baraban, PhD
Scott C Baraban, PhD
Professor and William K. Bowes Jr. Endowed Chair, Neuroscience Research University of California San Francisco
Lori Isom, PhD
Lori Isom, PhD
Chair and Professor, Department of Pharmacology; Professor, Neurology and Molecular and Integrative Physiology University of Michigan Medical Center
Seth Keller, MD
Seth Keller, MD
Neurologist Neurology Associates of South Jersey
Cameron S Metcalf, PhD
Cameron S Metcalf, PhD
Associate Director, ETSP; Research Assistant Professor, Pharmacology and Toxicology University of Utah
Veronica Hood, PhD
Veronica Hood, PhD
Scientific Director Dravet Syndrome Foundation
Mary Anne Meskis
Mary Anne Meskis
Executive Director Dravet Syndrome Foundation
Kate Hintz
Kate Hintz
President, Board of Directors Dravet Syndrome Foundation
Erin Reoyo
Erin Reoyo
Family Network Support Group Liaison Dravet Syndrome Foundation
Robert Roebling, MD
Robert Roebling, MD
Medical Director UCB
Fábio A. Nascimento, MD
Fábio A. Nascimento, MD
Epilepsy Clinical Fellow Massachusetts General Hospital- Harvard Medical School
Ingo Helbig, MD
Ingo Helbig, MD
Ronald J Kanter, MD
Ronald J Kanter, MD
M Zelime Elibol, MD
M Zelime Elibol, MD
Andreas Brunklaus, MD
Andreas Brunklaus, MD
Andrew Escayg, PhD
Andrew Escayg, PhD
Adrian Turner, PharmD
Adrian Turner, PharmD
Clinical Pharmacist Cook Children's Medical Center
Kimberly Goodspeed, MD
Kimberly Goodspeed, MD
Kathy Dodd
Kathy Dodd
Lisa Patterson, LCSW
Lisa Patterson, LCSW
Clinical Therapist and Social Worker Cook Children's Medical Center
Laurie Bailey
Laurie Bailey
Associate Director, Medical Affairs, Patient Advocacy Zogenix, now a part of UCB
Lori O'Driscoll
Lori O'Driscoll
Ann Barbier, MD, PhD
Ann Barbier, MD, PhD
Chief Medical Officer CAMP4
Christy Ardis, LCSW
Christy Ardis, LCSW
Palliative Clinical Therapist Cook Children's Medical Center
Kimberly Parkerson, MD, PhD
Kimberly Parkerson, MD, PhD
Senior Medical Director Stoke Therapeutics
Jamie Cohen, CPA
Jamie Cohen, CPA
Program Manager Dravet Syndrome Foundation
Jenny Gallo
Jenny Gallo
Special Events Director Dravet Syndrome Foundation
Amanda Stansfield
Amanda Stansfield

Agenda

Categories:

2:00 PM - 2:30 PM

Early Registration Packet Pickup

Brazos Ballroom

2:30 PM - 2:45 PM

Welcome & What to Expect

Brazos Ballroom

Mary Anne Meskis

2:45 PM - 3:15 PM

Science Primer

Brazos Ballroom

Veronica Hood, PhD

3:15 PM - 3:35 PM

Industry Update: Stoke Therapeutics

Brazos Ballroom

Kimberly Parkerson, MD, PhD

3:35 PM - 3:55 PM

Industry Update: Longboard Pharmaceuticals

Brazos Ballroom

3:55 PM - 4:15 PM

Industry Update: Epygenix Therapeutics

Brazos Ballroom

4:15 PM - 4:25 PM

Break

4:25 PM - 4:45 PM

Industry Update: Takeda

Brazos Ballroom

4:45 PM - 5:05 PM

Industry Update: Encoded Therapeutics

Brazos Ballroom

5:05 PM - 5:25 PM

Industry Update: CAMP4

Brazos Ballroom

Ann Barbier, MD, PhD

5:25 PM - 5:45 PM

Industry Update: UCB- Staccato Alprazolam

Brazos Ballroom

Robert Roebling, MD

5:45 PM - 6:00 PM

Meet our Board of Directors and Parent Ambassadors

Brazos Ballroom

6:00 PM - 7:30 PM

Meet & Greet (Dinner will be served)

Brazos Ballroom

7:30 PM - 8:00 PM

The Balancing Act Presents: Behind the Mystery of Dravet Syndrome

Brazos Ballroom

Partners

Contact information