2022 DSF Conference

Join us for DSF’s Family & Professional Conference on June 23-25, 2022, in collaboration with Cook Children’s Medical Center in Fort Worth, Texas. Join event

About

Our 3-day conference is unique in that it is designed to unite all groups committed to improving the lives of those with Dravet syndrome – including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry. There will be speaker presentations on the latest advances in research as well as sessions with up to date information impacting patient care. This event allows the opportunity to foster new relationships and collaborations, both for families and professionals. CME & CNE credits are available for healthcare professionals for our sessions on Friday, June 24th.

3
Days
43
Speakers
16
Sponsors
64
Sessions

Sponsors

Collaborative Supporter

Title Supporter

Premier Supporter

Featured Supporter

Gold Supporter

Silver Supporter

Dravet Activity Room Sponsor

Speakers

Danielle Andrade, MD, MsC, FRCPC
Danielle Andrade, MD, MsC, FRCPC
Professor of Medicine (Neurology); Director, Adult Genetic Epilepsy Program; Medical Director, Epilepsy Program University of Toronto
Christy Ardis, LCSW
Christy Ardis, LCSW
Palliative Clinical Therapist Cook Children's Medical Center
Laurie Bailey
Laurie Bailey
Associate Director, Medical Affairs, Patient Advocacy Zogenix, now a part of UCB
Scott C Baraban, PhD
Scott C Baraban, PhD
Professor and William K. Bowes Jr. Endowed Chair, Neuroscience Research University of California San Francisco
Ann Barbier, MD, PhD
Ann Barbier, MD, PhD
Chief Medical Officer CAMP4 Therapeutics
Andreas Brunklaus, MD
Andreas Brunklaus, MD
Consultant Pediatric Neurologist Royal Hosptial for Children
Jamie Cohen, CPA
Jamie Cohen, CPA
Program Manager Dravet Syndrome Foundation
Gaia Colasante, PhD
Gaia Colasante, PhD
Project Leader, Stem Cell and Neurogenesis Unit San Raffaele Hospital
Kathy Dodd
Kathy Dodd
Parent of a young adult with Dravet syndrome
M Zelime Elibol, MD
M Zelime Elibol, MD
Medical Director, Child Study Center Cook Children's Medical Center
Andrew Escayg, PhD
Andrew Escayg, PhD
Professor, Dept of Human Genetics Emory University
Ukpong Eyo, PhD
Ukpong Eyo, PhD
Assistant Professor, Department of Neuroscience and Center for Brain Immunology and Glia (BIG) University of Virginia
Jenny Gallo
Jenny Gallo
Special Events Director Dravet Syndrome Foundation
Kimberly Goodspeed, MD
Kimberly Goodspeed, MD
Assistant Professor, Pediatrics, Neurology, and Psychiatry UT Southwestern Medical Center
Ingo Helbig, MD
Ingo Helbig, MD
Pediatic Neurologist; Director, Genomic Science Children's Hospital of Philadelphia
Kate Hintz
Kate Hintz
President, Board of Directors Dravet Syndrome Foundation
Veronica Hood, PhD
Veronica Hood, PhD
Scientific Director Dravet Syndrome Foundation
Lori Isom, PhD
Lori Isom, PhD
Chair and Professor, Department of Pharmacology; Professor, Neurology and Molecular and Integrative Physiology University of Michigan Medical Center
Ronald J Kanter, MD
Ronald J Kanter, MD
Director, Electrophysiology Nicklaus Children's Hospital
Seth Keller, MD
Seth Keller, MD
Neurologist Neurology Associates of South Jersey
Kelly Knupp, MD
Kelly Knupp, MD
Associate Professor, Pediatrics and Neurology; Associate Research Director, Neuroscience Institute University of Colorado
Linda Laux, MD
Linda Laux, MD
Associate Professor, Pediatrics; Attending Physician, Neurology and Epilepsy Northwestern University; Ann & Robert H. Lurie Children's Hospital
Mary Anne Meskis
Mary Anne Meskis
Executive Director Dravet Syndrome Foundation
Cameron S Metcalf, PhD
Cameron S Metcalf, PhD
Associate Director, ETSP; Research Assistant Professor, Pharmacology and Toxicology University of Utah
Fábio A. Nascimento, MD
Fábio A. Nascimento, MD
Epilepsy Clinical Fellow Massachusetts General Hospital- Harvard Medical School
Lori O'Driscoll
Lori O'Driscoll
Founder & Executive Director Ciara's Light Foundation
Christos Papadelis, PhD
Christos Papadelis, PhD
Director of Research, Jane and John Justin Neurosciences Center Cook Children's Medical Center
Kimberly Parkerson, MD, PhD
Kimberly Parkerson, MD, PhD
Vice President, Head of Neurology Clinical Development Stoke Therapeutics
Lisa Patterson, LCSW
Lisa Patterson, LCSW
Clinical Therapist and Social Worker Cook Children's Medical Center
Hilary Pearson, MD
Hilary Pearson, MD
Medical Director, Sleep Laboratory Cook Children's Medical Center
M Scott Perry, MD
M Scott Perry, MD
Medical Director, Neurology; Co-Director, Jane and John Justin Neurosciences Center; Medical Director, Genetic Epilepsy Clinic Cook Children's Medical Center
Colleen Penwell
Colleen Penwell
Parent of a young adult with Dravet syndrome
Erin Reoyo
Erin Reoyo
Family Network Support Group Liaison Dravet Syndrome Foundation
Robert Roebling, MD
Robert Roebling, MD
Medical Director UCB
Dave Shahani, MD
Dave Shahani, MD
Medical Director, Epilepsy Monitoring Unit Cook Children's Medical Center
Adrian Turner, PharmD
Adrian Turner, PharmD
Clinical Pharmacist Cook Children's Medical Center
Elaine Wirrell, MD
Elaine Wirrell, MD
Director, Pediatric Epilepsy; Professor, Neurology Mayo Clinic
Lorianne Masuoka, MD
Lorianne Masuoka, MD
Chief Medical Officer Epygenix
Yasir Khan MD, MPH
Yasir Khan MD, MPH
Associate Medical Director Takeda
Randall Kaye, MD
Randall Kaye, MD
Chief Medical Officer Longboard Pharmaceuticals
Salvador Rico, MD, PhD
Salvador Rico, MD, PhD
Chief Medical Officer Encoded Therapeutics
Clare Carey
Clare Carey
Board Member & Parent of a young adult with Dravet syndrome Dravet Syndrome Foundation
Janice Stanley
Janice Stanley
Parent of a young adult with Dravet syndrome

Agenda

Categories:

2:00 PM - 2:30 PM

Early Registration Packet Pickup

Brazos Ballroom

2:30 PM - 2:45 PM

Welcome & Meet our Staff

Brazos Ballroom

Mary Anne Meskis

2:45 PM - 3:15 PM

Science Primer

Brazos Ballroom

Veronica Hood, PhD

3:15 PM - 3:35 PM

Industry Update: Stoke Therapeutics

Brazos Ballroom

Kimberly Parkerson, MD, PhD

3:35 PM - 3:55 PM

Industry Update: Longboard Pharmaceuticals

Brazos Ballroom

Randall Kaye, MD

3:55 PM - 4:15 PM

Industry Update: Epygenix Therapeutics

Brazos Ballroom

Lorianne Masuoka, MD

4:15 PM - 4:25 PM

Break

4:25 PM - 4:45 PM

Industry Update: Takeda

Brazos Ballroom

Yasir Khan MD, MPH

4:45 PM - 5:05 PM

Industry Update: Encoded Therapeutics

Brazos Ballroom

Salvador Rico, MD, PhD

5:05 PM - 5:25 PM

Industry Update: CAMP4

Brazos Ballroom

Ann Barbier, MD, PhD

5:25 PM - 5:45 PM

Industry Update: UCB- Staccato Alprazolam

Brazos Ballroom

Robert Roebling, MD

5:45 PM - 6:00 PM

Meet our Board of Directors and Parent Ambassadors

Brazos Ballroom

6:00 PM - 7:30 PM

Meet & Greet (Dinner will be served)

Brazos Ballroom

M Scott Perry, MD

7:30 PM - 9:00 PM

The Balancing Act Presents: Behind the Mystery of Dravet Syndrome

Brazos Ballroom

Partners

Jazz Pharmaceuticals
Jazz Pharmaceuticals
UCB
UCB
Neurelis, Inc.
Neurelis, Inc.
Ciara's Light Foundation
Ciara's Light Foundation
Xenon
Xenon
Zogenix, a wholly-owned subsidiary of UCB
Zogenix, a wholly-owned subsidiary of UCB
Encoded Therapeutics
Encoded Therapeutics
Longboard Pharmaceuticals
Longboard Pharmaceuticals
Epygenix
Epygenix
Takeda
Takeda
Stoke Therapeutics
Stoke Therapeutics
Biocodex
Biocodex
Cook Children's Medical Center
Cook Children's Medical Center
Labcorp MNG Laboratories
Labcorp MNG Laboratories
Honey Grove Pharmacy
Honey Grove Pharmacy
Hannahtopia
Hannahtopia
Charlie Foundation
Charlie Foundation

Contact information